Anyone who deals with children knows that getting them to sit still for more than a few minutes can be mission impossible. This can be especially challenging for children with hemophilia B who may receive regular infusions of factor IX therapy that helps them manage their hemophilia.
Part educational and part entertaining, each episode takes a team of “Infusionauts” and the children on a mission into the bloodstream. Along the way, children learn how to prepare for an infusion and more about the role that factor IX plays in hemophilia B.
The series was created based on patient research and focus groups that found it can be challenging for children to stay still during the infusion process. They also expressed the need for educational materials to help families learn about hemophilia B and infusing.
“We are very excited about Sanofi Genzyme’s new audio adventure series. We believe providing engaging and educational tools like this new skill for Alexa have the potential to improve the infusion experience for families experiencing hemophilia B,” said Kim Phelan, Vice President of The Coalition for Hemophilia B, a patient organization.
Available in English, the Infusions Squad skill can be enabled on the Alexa app, Alexa Skills store, or on any Alexa-enabled device. The Infusions Squad Alexa skill recently won the London Creative Floor Healthcare Award for Best Use of Technology.
Hemophilia is a rare genetic disorder in which a person’s blood does not clot normally because of insufficient levels of certain clotting factors – proteins that control bleeding. People with hemophilia B do not have enough factor IX1.